I first noticed this back in 2009. I had a small reddish ring on the top of my right foot. My family doctor told me to go see a dermatologist which i did. By the time my appointment came around i had another reddish ring on my elbow. I would say the size of a dime maybe smaller. My dermatologist said ohh don't worry about it, it will go away on it's own.. no problem. Well here i am 3 years later and the spot on my elbow is as big as my arm. I have these reddish rings all over, shoulder, legs, arms, wrist, face, back, butt and today i noticed 2 spots on the side of my breast.
I changed dermatologist as insurance changed and went to this new guy.
My new dermatologist put me on all kinds of creams. Every time i had appointment he would prescribe me another cream. And nothing helps. So frustrating. I'm glad summer is soon ending because i wore jeans most of time to cover myself up as i am embarrassed. I had cortisone shots, went on antibiotics and nothing works.
I found an article of topiramate and Granuloma Annulare might have a link. I am on topiramate for seizures and migraine's. Very small dose of 50mg. I stopped the topiramate for week and still rash spreading because like i said i found two more spots on me today. If anyone else is on Topiramate and stopped and it cleared up, how long were you off before your rash GA cleared up? Ohh and i am on other meds for seizures so no worries people I'm under doctor care. We just wanted to see maybe if the topiramate and GA might be linked in my situation but I'm having my doubts.
I have a boat load of stuff wrong with me. But i don't have diabetes or a thyroid problem that i read online that this GA might be linked with. I was tested for everything and all tests normal.
I do have seizures, Trigeminal neuralgia, I had surgery for this but the attacks ( FACIAL PAIN THAT IS LIKE SUICIDAL PAIN FOR REAL ) came back a few years later after my surgery, migraine's, osteopenia, joint pains, and severe eye issues after a entropion surgery i had that didn't work out so good. Really that in itself is another story that i will post about later. I got blepharitis as well. Blepharitis i never was told i had that until after the entroption surgery so who knows? So my med list is big. I will post my med list soon.
I'm trying to figure this out. Maybe a doctor or us GA sufferer's can talk here and maybe figure this out. There has to be a cure for this. No one should have to walk around with this. A lot of people ask? Do you have ringworm? Yes it does look like it but no i don't have ringworm.
I also went to John Hopkins last month and he recommended the PUVA or narrow band light.
I go back to dermatologist in October to talk to him about the narrow band light, will update and let you know how i make out.
I'm very depressed about this. It's like great something else that i have with no cure.
Here are some pictures. My elbow is the worst, i have like cyst under the skin. I know gross right ughh. The other spots are smaller, but they grow everyday. I really don't want to be covered all over like my elbow looks.
I will post more as i can't sit for too long in front of computer. Any thoughts, comments or doctor's out there willing to help me and others are welcomed.
Here are some pictures of what i look like now.
Thanks for your time..
12 comments:
Did you ever stop taking the Topamax for longer than one week? I just found out today that the mass that I had surgically removed from my hand was GA. I take both Topamax and Levoxyl. I'm going to be talking with my doctors asap about switching to different meds. ~ Karen
My name is Christine and I was diagnosed with generalized granulona annulare when I was 11 years old...it started out on my feet...then to my shins, thighs, buttocks, hands, Elbows and inner arms...it was everywhere and it has been embarrassing for me my whole life...I hated wearing a bathing suit, shorts, sandals or at times when it was really bad to even shake someone's hand because when it was flared on my hands people would think I had some contagious disease or something ...my dermatologist when I was young tried everything . I had injections in my shins which made the spots go away but they were very painful and caused permanent stretch mark type of scarring there so I refused to continue with the injections anywhere else..tried different creams and medicated tapes...nothing really worked...I went to a different dermatologist when I was about 16 and he said that eventually all the spots would go away on their own in a few years and that I was doing more damage with treatment choices...so I stopped all treatments and lived with it my whole life....it moved around...got bigger, smaller...darker...bumpier...and was always there...I am now almost 48 years old. On May 5th of this year a friend suggested that I switch my coffee to Sozo for it's overall health benefits and use their nutritional beverage because it was off the charts higher than anything on the planet for it's antioxidants....not only did it help me with my back pain from a car accident I had in January and knee pain from a fall that I had 12 years ago....but my granulona annulare is almost completely gone! Today is August 14th, 2014 ... I have suffered for 36 and a half years and after only 90 days of drinking this Sozo...I am free! Coincidence? I don't think so...I am determined to share this with people who are suffering with this ... If you decide to try this and it works please share your testimonial with me as i plan to take this to the medical field to help as many people with this as possible.
Watch this short video:
http://vimeo.com/m/102293062
Go hear to try Sozo...www.sozolife.com/14menow
It is 3 oz of the nutritional beverage and 2 cups of coffee a day that I have been using
My email is cmanchisi@gmail.com
I was diagnosed 16 years ago, I am now 55years old. It began to spread to my hands about 2 years ago. Went in again for another biopsy 1 month ago, same diagnosis...but the doctor suggested NICINAMIDE (a non-flush version of niacin). It cost me under $3.00 for a month taking 2, 500 mg pills a day (and that is without insurance being used). The bumps on my hand have gone down probably about 85% in the last month. Going to go another month to make sure it"s out of my system. ONE NOTE ***before you take niacin look up it"s properties, it effects quite a few things in your body, so be aware of it !!! TRY NIACINAMIDE !!!!
I have never actually been diagnosed with granuloma annulare, but I am positive that is what these spots on my feet and ankles are.
January 2014 I started a low dose of Trokendi (an extended-release version of topiramate) for weight loss. Not long after, I noticed discolored blotches on my legs. But I didn't make the connection. I eventually asked a doctor about the blotches during an appointment, but she said it was probably just old bruises that were taking a long time to heal, since I have such fair skin. I knew that wasn't what they were.
Late 2014, I was taken off the Trokendi (I was having body twitching and jerks, and they wanted to see if that might be causing it.) A month or two later, the spots on my legs and feet started to fade. Finally! But again, I didn't make the connection.
Earlier this year I went to a neurologist because the twitches and jerks hadn't stopped. He determined that I was having a type of seizures. And what did he prescribe me? Trokendi! But of course, a higher dose than I had taken before. And it wasn't a month after taking a the full dose that I had blotches on my feet. This time I made the connection.
I am convinced that the topiramate (Topamax/Trokendi) can cause this. It's not enough to make me quit taking it, because it does help with my seizures. But the drug companies and doctors probably should know that this is a possible side effect.
So I have the same dang thing on my thigh lol my husband said it looked like ringworm, but I haven't been in any sandboxes. It's about the size of a dime and fades in and out for the last 6-7 months. I'm on 100 mg of topomax. This drug is such a pain in the butt. It's by far the most effective drug ever to manage my migraines, but I am mean as hell now. I am so irritated with everyone around me, I have no energy, which is crazy considering I also take Adderall. My hair is thinning out like crazy I'm taking 5000 mcg of biotin a day plus using the nioxin shampoo and conditioner. My scalp is itchy as hell. And my face, hands, and feet are always tingling. Not to mention I can't remember crap, when I already have a hard time focusing. But migraines really really suck too. So I'm not sure if the pro is out-weighing allll the cons here.
My email is ericaharris254@gmail.com
So I have the same dang thing on my thigh lol my husband said it looked like ringworm, but I haven't been in any sandboxes. It's about the size of a dime and fades in and out for the last 6-7 months. I'm on 100 mg of topomax. This drug is such a pain in the butt. It's by far the most effective drug ever to manage my migraines, but I am mean as hell now. I am so irritated with everyone around me, I have no energy, which is crazy considering I also take Adderall. My hair is thinning out like crazy I'm taking 5000 mcg of biotin a day plus using the nioxin shampoo and conditioner. My scalp is itchy as hell. And my face, hands, and feet are always tingling. Not to mention I can't remember crap, when I already have a hard time focusing. But migraines really really suck too. So I'm not sure if the pro is out-weighing allll the cons here.
My email is ericaharris254@gmail.com
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Hi,
I seen your infections on the body and it is most commonly happens due to Fungul infection or related skin issues.
I am using Itraconazole capluse 200 mg with a skin tube Betanovate GM cream.
I am sure you will find help ....Start it as soon as possible.
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